Monthly Archives: June 2011

It’s official – I’m in remission!!!! Yahoo! All the tests show that there is only 1.5% of my own bone marrow, which means 98.5% of it is my brother’s. I have a strong donor bone marrow and my immune system … Continue reading →

Well, since the Hickman Line was taken out last week, which is a good thing, it also means that all blood tests from now on will be done with needles, again. Yes, I am back to having my blood drawn … Continue reading →

Huge milestone again today – I had my Hickman Line removed! Yeah – I can now shower without covering up in plastic wrap and waterproof tape. This is a huge step, I am so extremely delighted. And, it also means one … Continue reading →

Yesterday was the ‘Journey of Hope’ symposium organized by the Leukemia Lymphoma Society. There were great speakers on new therapies and genome discoveries and of course the awards and tributes. We see first hand where the research money goes and the … Continue reading →

Recently I have had increased nausea and heartburn which could be a sign of Graft-versus-host-disease. In order to confirm that, I have had an endoscopy today. For those of you that don’t know what an endoscopy is let me tell … Continue reading →

Yesterday was the last 2 tests in my Day 100 series of tests. Based on 2 of my last CT Scans where it went interstitial (the most unpleasant thing you can have during a CT Scan where your vein bursts and … Continue reading →

Today was the Schirmer’s Eye Test. Many of these tests are to make sure that the new stem cells are not wreaking havoc on my system and attacking things it shouldn’t. This Schirmer’s test is used to determine whether the eye produces enough … Continue reading →

Today’s tests were for pulmonary function and salivary glands. You try your best not to spit for the pulmonary and spit as much as possible with the salivary – all in a day’s work! The pulmonary function test has you … Continue reading →

Today, part of the Day 100 series of tests, was my bone marrow biopsy. I get excessively anxious, nervous, and downright scared of this procedure. In fact, it’s 2 procedures - bone biopsy and marrow aspiration, both of which are painful. … Continue reading →

Day 100 is here – how fast time goes by. One hundred days since the transplant, 100 days of waiting to see if it worked, 100 days of uncertainty and angst. So now what? What comes next? More waiting. What is the … Continue reading →