Severe Multiple-Organ ACUTE GVHD – Part 4 – LUNG INFECTION

LUNG INFECTION

In order to be able to deal with all the various ACUTE GVHD issues since early February, many high dosage of steroids and meds were given. Unfortunately, lots of different steroids at high doses also means that I am extremely immunocompromised and contracted a lung infection around the end of February. I began coughing on a regular basis and eventually it turned more into a wet wheezing. As it progressed, I began having more and more shortness of breath.

MC and Lynn March 2012

MC and Lynn March 2012

Early March, my best friend Lynn from Montreal paid me a surprise visit which was incredible. On March 5th, as she was leaving, I was well enough and was given an hour to allow me to go see her off in the lobby. As I made my way back up to my room, I realized I was completely out of breath and excessively dizzy. The nurses examined me and realized that my oxygenation was way too low. I was immediately put on oxygen. Subsequent Chest X-Rays, Chest CT Scans and Bronchoscopy showed that I had a lung infection.

Oxygen needed

Oxygen needed

I was on oxygen for a few days in early March.

They couldn’t however tell what type of infection, whether it was fungal and/or viral. Therefore, they had me on all sorts of anti-fungal, anti-viral, and anti-biotic meds. Again, all this was meant to treat the lung infection, however, all these meds were/are contributing to the elevated liver enzymes.

Everything I ingest, all the meds, all the steroids, must somehow be balanced out in consequence of the excessively elevated liver enzymes. As soon as I take meds that make the liver worse, then it all has to be readjusted.

Then on April 8th, after a day of fever, they confirmed I had pneumonia in my left lung. Again, various antibiotics are given in the hope of getting rid of this. Thankfully, I am no longer on additional oxygen which is a good thing.

I still wheeze a bit and there is still a little crackling in my lungs so that is not yet all cleared up.

Marie-Chantal

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About Marie-Chantal Marchand

I'm a Photographer, a Writer, and a foodie. Used to be a Professional Development Coordinator and a Meeting Planner. Now, I'm Marie-Chantal Marchand, Survivor - Warrior! This is not 'my' disease. Nor do the TP53 w/17p Deletion, Richter's Transformation, stem cell transplant, GVHD, life-threatening and physical complications define me. It is only passing through. This journey has taught me to remain cautiously optimistic, hopeful and have faith that my attitude and sense of humour will get me through the challenges. There is never a situation serious enough where you cannot find something to laugh about. I will try to keep this lighthearted and humourous however serious information might sneak in. This blog is for all my friends and family wishing to follow my progress, as well as anyone else on a similar journey wishing to share. Comments, encouragements, positive energy, visits and hugs are highly welcome. Thank you for being with me on this journey. Marie-Chantal
This entry was posted in Acute GVHD, Possibility of dying, Post-Transplant Issues, Side effects of long term steroids. Bookmark the permalink.

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