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Category Archives: Chronic GVHD
Skin GVHD – 25 Feb 2013
Skin GVHD has been acting up. My skin is paper-thin and very fragile. Not only do I have lots of bruises and petechias, threatening to open up and bleed, but now I have steroid-induced ‘stretch marks’ which are oozing. They … Continue reading
Remembering we are not alone – 14 Feb 2013
Happy Valentines! Yesterday I was reminded that I am not alone. Oftentimes, I write my blog wondering if it is read, who reads it and is what I write pertinent to others. A while after I posted it I received … Continue reading
Update 2nd Vertebroplasty – 30 Jan 2013
The 2nd vertebroplasty was done yesterday. They were suppossed to do T10 and T12 but I gave them permission to asses on the spot and do what they deemed to be the most efficient. Therefore, they ended up doing T7, … Continue reading
Financial Woes of Chronic Illnesses – 27 Jan 2013
Somebody once said cancer is easy, living is difficult. I’m surviving cancer, a stem cell transplant, GVHD, complications from the life-saving meds, so now what? I’ve already been through the steroid myopathy where I needed to learn to build muscles … Continue reading
Win some – Lose some – 18 Jan 2013
Waiting to hear further details regarding the next vertebroplasty to take place (perhaps next week) in my upper back. They have to select which compressed disks and fractures would be most beneficial to ‘fix’ as they can only do 3 … Continue reading
Posted in Chronic GVHD, Healing Process, Hospitalization, Immunocompromised Issues, Mobility Issues, New Normal, Side effects of long term steroids, Updates
Tagged back pain, chronic GVHD, cll, diabetes, elevated liver enzymes, mobility issues, physiotherapy, Steroid myopathy, steroids, vertebroplasty
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Multiple Fractures – 16 Jan 2013
Wow! 2013. How fast time goes by and yet, sometimes, not fast enough. I’ve been here since November 14, 2012 and perhaps will be here and/or at another facility for another few months. Moral comes and goes. It’s normal. Well, … Continue reading
Update – Revisiting GVHD – 19 Aug 2012
Here we are, 2 years almost to the day, when I began chemo (diagnosed Aug 2009 but began chemo Aug 2010). That’s when my ‘character building’ journey truly began, and I thought I had enough character as it was! Much … Continue reading
Posted in Chronic GVHD, Healing Process, Mobility Issues, New Normal, Updates
Tagged atrophied muscles, bruises, bursting blood vessels, chronic GVHD, cll, ear, echymoses, eyes, gi tract, hair growth, hair loss, healing, Infections, liver, liver biopsy, long-term effects of steroids, Lung Infection, lungs, lymphoma, mobility, mobility issues, osteoporosis, oxygen, petechia, physiotherapy, purpura, skin, Steroid myopathy, updates
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Grocery challenges – 5 Aug 2012
Or rather what I like to refer to as groceries from hell. Groceries, something everyone takes for granted, do without a forethought, second thought or after thought. Most people go through a grocery store, pick up what they need and … Continue reading
Dance of the Meds’ Side-Effects – 10 July 2012
One step forward – two steps backwards, do the shuffle and the hokey pokey – put your left foot in, take your left foot out and shake it all around… Strangely enough, this actually is a very accurate account of … Continue reading
Posted in Chronic GVHD, Healing Process, New Normal, Side effects of long term steroids
Tagged antibiotics, bruises, C. Diff., collapsed lungs, constant shaking, dry eyes, dry mouth, ear infection, elevated liver enzymes, endurance, eye GVHD, jaundiced eyes, Liver GVHD, long-term use of steroids, Lung Infection, Marie-Chantal Marchand, Mouth GVHD, painful joints, paper-thin skin, patient, perforated ear drum, scarred liver, scarred lungs, sense of humour, steroid fat deposit neck and stomach, Steroid myopathy, stiff legs, strength, swollen feet, wobbly legs
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What I won’t miss about the hospital – 6 May 2012
Other than the obvious of having been hospitalized for three months and having gone through hell and back, there are many things I will definitely NOT miss from here. Procedures, Tests, Transfusions, Infusions, Injections, etc. – the first thing I … Continue reading
Posted in Chronic GVHD, Going Home, Healing Process, Hospitalization, New Normal
Tagged air vents, blood sugar check, blood transfusions, blood work, bone marrow biopsy, bronchoscopy, cabin fever, Chest X-Rays, colonoscopy, constant interruption, constantly changing rooms, CT Angio Scans, CT Scans, diabetes, Dieulafoy Lesion< haemaclipping, dignity, ear plugs, efficiency, freezing rooms, hats, Head CT Scan, healing, home assistance, home help, home sick, hospital food, hospital noises, hospital rooms, human errors, Infections, infusions, IV lines, IV poles, Marie-Chantal Marchand, meds, midnight blood sugar pricks, midnight vitals, napping, neck lymph node biospy, no privacy, noise, PICC lines, platelet transfusions, privacy, procedures, Push Enteroscopy, respect, scarves, sigmoidoscopy, sleep dprivation, tests, visitors, wrong meds
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