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Categories
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Category Archives: Healing Process
Update – 23 April 2013
A few weeks ago I was transferred to the Transitional Care Unit at UBC. It is far, I feel cut off, and since I no longer have access to a powered wheelchair, I have very limited mobility. I do physio … Continue reading
Posted in Healing Process
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Skin GVHD – 25 Feb 2013
Skin GVHD has been acting up. My skin is paper-thin and very fragile. Not only do I have lots of bruises and petechias, threatening to open up and bleed, but now I have steroid-induced ‘stretch marks’ which are oozing. They … Continue reading
Freedom or Chaos – 25 Feb 2013
Freedom or Chaos, sometimes they are different but in this case, they are synonymous. I have an electric wheelchair now which provides me the freedom to move around the hospital and protect my back from too much strain and the … Continue reading
Remembering we are not alone – 14 Feb 2013
Happy Valentines! Yesterday I was reminded that I am not alone. Oftentimes, I write my blog wondering if it is read, who reads it and is what I write pertinent to others. A while after I posted it I received … Continue reading
Complex Pain Management – 13 Feb 2013
Complex Pain Management specialists have become my best friends. It is pretty self-explanatory. They are responsible to make sure that the pain is under control and all the pills play nice together. We are talking serious drugs here and today … Continue reading
Posted in Back pain & fractures, Going Home, Healing Process, Home Challenges, Mobility Issues, New Normal, Side effects of long term steroids
Tagged adapted apartment, assisted living, back pain, GVHD, increased expenses, independence, limited mobility, living with cancer, mobility issues, steroids, vertebroplasty, wheelchair
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Update 2nd Vertebroplasty – 30 Jan 2013
The 2nd vertebroplasty was done yesterday. They were suppossed to do T10 and T12 but I gave them permission to asses on the spot and do what they deemed to be the most efficient. Therefore, they ended up doing T7, … Continue reading
Vertebroplasty Part Deux – 28 Jan 2013
The second vertebroplasty procedure is tentatively scheduled for Monday January 28, 2013. They will go and fix 3 of the compressed disks in the middle of my back, T10 and 2 others. There are 5 total that would need to … Continue reading
Posted in Healing Process
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Financial Woes of Chronic Illnesses – 27 Jan 2013
Somebody once said cancer is easy, living is difficult. I’m surviving cancer, a stem cell transplant, GVHD, complications from the life-saving meds, so now what? I’ve already been through the steroid myopathy where I needed to learn to build muscles … Continue reading
Progress vs Encouragement – 20 Jan 2013
People enjoy ‘progress’ reports and of course they are positive and easier to handle than news of tougher times. However, progress should be just an update. As a patient, I know I am making progress and am happy about it … Continue reading
Posted in Healing Process
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Win some – Lose some – 18 Jan 2013
Waiting to hear further details regarding the next vertebroplasty to take place (perhaps next week) in my upper back. They have to select which compressed disks and fractures would be most beneficial to ‘fix’ as they can only do 3 … Continue reading
Posted in Chronic GVHD, Healing Process, Hospitalization, Immunocompromised Issues, Mobility Issues, New Normal, Side effects of long term steroids, Updates
Tagged back pain, chronic GVHD, cll, diabetes, elevated liver enzymes, mobility issues, physiotherapy, Steroid myopathy, steroids, vertebroplasty
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