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Category Archives: Hospitalization
Financial Woes of Chronic Illnesses – 27 Jan 2013
Somebody once said cancer is easy, living is difficult. I’m surviving cancer, a stem cell transplant, GVHD, complications from the life-saving meds, so now what? I’ve already been through the steroid myopathy where I needed to learn to build muscles … Continue reading
Win some – Lose some – 18 Jan 2013
Waiting to hear further details regarding the next vertebroplasty to take place (perhaps next week) in my upper back. They have to select which compressed disks and fractures would be most beneficial to ‘fix’ as they can only do 3 … Continue reading
Posted in Chronic GVHD, Healing Process, Hospitalization, Immunocompromised Issues, Mobility Issues, New Normal, Side effects of long term steroids, Updates
Tagged back pain, chronic GVHD, cll, diabetes, elevated liver enzymes, mobility issues, physiotherapy, Steroid myopathy, steroids, vertebroplasty
4 Comments
Multiple Fractures – 16 Jan 2013
Wow! 2013. How fast time goes by and yet, sometimes, not fast enough. I’ve been here since November 14, 2012 and perhaps will be here and/or at another facility for another few months. Moral comes and goes. It’s normal. Well, … Continue reading
Rehab for rehab – 12 Jan 2013
I have been moved to the BMT unit a few days ago. There is a huge outbreak of the Norwolk virus in the city and most BMT patients have been ‘repatriated’ on the BMT for our own protection. My cold … Continue reading
Merry Christmas – 25 Dec 2012
Merry Christmas everyone. I am doing ok although I did got a cold for Christmas. I try so hard to protect myself and ask people to wear masks but no one seems to believe how immunocompromised i am and what … Continue reading
Posted in Hospitalization, Immunocompromised Issues, Updates
2 Comments
Brief update – 21 Dec 2012
I have had no access to the internet for over a month which explains my silence. Just a very brief update and I will provide further information in the days to come. I have been hospitalized for a month now … Continue reading
Health update – 12 October 2012
I have been out-of-touch for a while now due to a few set backs and extreme fatigue and pain. Therefore, here is an update. In mid-September I was riddled with a few viruses (namely, respiratory virus infection which I’ve had … Continue reading
Posted in Healing Process, Home Challenges, Hospitalization, Immunocompromised Issues, Mobility Issues, Side effects of long term steroids
Tagged anemia, bacteria, blood transfusions, C. Diff., emotional, extreme fatigue, food delivery, GCSF, help bathing, Infections, isolation, IVIG, long-term steroid damage, multi-organ GVHD, overwhelming, pain, physical issues, platelet transfusion, pneumonia, psychological, respiratory infection, steroid withdrawal issues, steroid withdrawal pain, viruses
3 Comments
What I won’t miss about the hospital – 6 May 2012
Other than the obvious of having been hospitalized for three months and having gone through hell and back, there are many things I will definitely NOT miss from here. Procedures, Tests, Transfusions, Infusions, Injections, etc. – the first thing I … Continue reading
Posted in Chronic GVHD, Going Home, Healing Process, Hospitalization, New Normal
Tagged air vents, blood sugar check, blood transfusions, blood work, bone marrow biopsy, bronchoscopy, cabin fever, Chest X-Rays, colonoscopy, constant interruption, constantly changing rooms, CT Angio Scans, CT Scans, diabetes, Dieulafoy Lesion< haemaclipping, dignity, ear plugs, efficiency, freezing rooms, hats, Head CT Scan, healing, home assistance, home help, home sick, hospital food, hospital noises, hospital rooms, human errors, Infections, infusions, IV lines, IV poles, Marie-Chantal Marchand, meds, midnight blood sugar pricks, midnight vitals, napping, neck lymph node biospy, no privacy, noise, PICC lines, platelet transfusions, privacy, procedures, Push Enteroscopy, respect, scarves, sigmoidoscopy, sleep dprivation, tests, visitors, wrong meds
6 Comments