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Category Archives: Post-Transplant Updates
Lung Infection and Pneumonia – 24 August 2012
Yes, that’s right, I currently have lung infections – plural. UGH! The last update sent out on Sunday, August 19 (5 days ago) stating that my lungs were clear and doing fine was accurate, as far as I knew. How … Continue reading
Posted in Immunocompromised Issues, New Normal, Post-Transplant Issues, Post-Transplant Updates, Side effects of long term steroids, Updates
Tagged bacteria, bloody eye, bmt, Infections, Lung Infection, lungs, pneumonia, Respiratory Syncytial Virus, RSV, severely immunocompromised, trauma, virus
3 Comments
Standing Up High Tech – 18 April 2012
Steroid Myopathy (weakness and loss of body and muscle mass in the hips, thighs, legs, feet, shoulders and upper back, and to a lesser extent the arms as well) had me completely bed-bound since approximately April 7, 2012. Daily, I … Continue reading
Posted in Healing Process, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Side effects of long term steroids, Tips & Tricks
Tagged autonomy, bedpan, build muscles, build strength, don't give p, ego, exercising, find tips and tricks, independence, keep moral up, loss of body mass, loss of movemement, loss of muscle mass, occupational therapy, physiotherapy, shuffle, standing on own two feet, Steroid myopathy, use of arms, use of legs
5 Comments
Chronic vs Acute GVHD (Part 1) – 6 April 2012
Multiple Chronic GVHD GVHD (Graft-Versus-Host Disease) where the graft (donated stem cells which engraft in the bone marrow, creating a new immune system) perceives the Host (the recipient, my body – me) as foreign and attacks it. Now a little … Continue reading
Posted in Post-Transplant Updates
1 Comment
Confusion Is Not Good – 24 March 2012
Ok, so being confused in the middle of the night while having high liver enzyme issues is definitely NOT a good idea! See, when your liver enzymes are too high, demonstrating confused behaviour means that there’s a shift in reality. Everything … Continue reading
Hospital Update – 28 Feb 2012
Well here I am again. Sorry for the lengthy inactivity but I was unfortunately without internet access for a long time along with not feeling well enough for a while. I thought I would provide a brief synopsis of what … Continue reading
Posted in Post-Transplant Updates
Tagged bmt, bone marrow transplant, gi tract, nourishment, relapse, transplant unit
2 Comments
Relapse Confirmed – 7 Feb 2012
Today I met with my hematologist and upon reviewing the results of all the tests and biospies done over the past 2 weeks, she confirmed that I have relapsed – less than a year post-stem cell/bone marrow transplant. There’s some good and bad news. … Continue reading
CT Scan & Upcoming Tests – 25 Jan 2012
CT Scan this past Monday Jan 23 went fine. Had my weekly blood tests in the morning and they used a new vein in my hand (the vein is not new, it was just never used for blood tests and it … Continue reading
Posted in Post-Transplant Updates
4 Comments
Bone Marrow Biopsy – 22 Jan 2012
Last Thursday, Jan 19, was my 4th Bone Marrow Biopsy in a year and a half - woohoo! Good times. They don’t get any easier or more fun and each time they hurt equally as bad as the last one but they … Continue reading
Posted in Post-Transplant Updates
6 Comments
