Category Archives: Relapse issues

Hearing trickling back and Update – 30 June 2012

Posted on June 30, 2012 by Marie-Chantal Marchand

Strangely enough, today, I was watching a movie and kept hearing a faint whistling vibration on the left side of my head. I thought they were noises coming from outside the window. Annoying as it was, I realized that sound was slowly trickling back … Continue reading →

Posted in Healing Process, Relapse issues, Possibility of dying, Side effects of long term steroids, Acute GVHD, New Normal | Tagged Richter's Syndrome or Transformation, TP53 with 17p Deletion, cll, Lung Infection, living with cancer, fear of dying, Marie-Chantal Marchand, remission, CT Scans, healing from cancer, hearing issues, fear of GVHD, tapering off steroids, exercise, liiver issues, spleen issues, x-rays, fear of relapse, lymph nodes, fear of the unknown, life is good, hearing coming back, new normal | Leave a comment

My Daily Routine – 21 April 2012

Posted on April 21, 2012 by Marie-Chantal Marchand

Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →

Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids | Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends | 1 Comment

Standing Up High Tech – 18 April 2012

Posted on April 19, 2012 by Marie-Chantal Marchand

Steroid Myopathy (weakness and loss of body and muscle mass in the hips, thighs, legs, feet, shoulders and upper back, and to a lesser extent the arms as well) had me completely bed-bound since approximately April 7, 2012. Daily, I … Continue reading →

Posted in Healing Process, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Side effects of long term steroids, Tips & Tricks | Tagged autonomy, bedpan, build muscles, build strength, don't give p, ego, exercising, find tips and tricks, independence, keep moral up, loss of body mass, loss of movemement, loss of muscle mass, occupational therapy, physiotherapy, shuffle, standing on own two feet, Steroid myopathy, use of arms, use of legs | 5 Comments

To be “15″ again! – 22 March 2012

Posted on March 22, 2012 by Marie-Chantal Marchand

To be “15″ again!!!! And I don’t mean the age. For all those of you sending me positive healing energy, we need to focus on that Magic Liver Enzyme Number “15“!!!! My liver enzymes are very high which is not … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Tips & Tricks | Tagged accummulated fluids, Acute GVHD, Daily tips and tricks, elevated liver enzymes, fashion, getting around, limited mobility, liver enzyme, living with cancer, mobility issues, nature, nature conection, sitting in a chair, spirituality, swollen feet | 4 Comments

Harsh Reality – 17 March 2012

Posted on March 17, 2012 by Marie-Chantal Marchand

Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues | Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids | 6 Comments

Chemo – 8 Feb 2012

Posted on February 9, 2012 by Marie-Chantal Marchand

Well, here I am, in chemo again. It is technically my fourth time at it since August 2010 (too many treatments to remember) but the first time post-transplant. Maybe this time around when I lose my hair again it will come back … Continue reading →

Posted in Post-Transplant Issues, Relapse issues | Tagged chemo, CHOP-R, relapse post stem cell/bone marrow transplant, Richter's Transformation | 5 Comments

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Category Archives: Relapse issues

Hearing trickling back and Update – 30 June 2012

My Daily Routine – 21 April 2012

Standing Up High Tech – 18 April 2012

To be “15″ again! – 22 March 2012

Harsh Reality – 17 March 2012

Chemo – 8 Feb 2012

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