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Category Archives: Side effects of long term steroids
Skin GVHD – 25 Feb 2013
Skin GVHD has been acting up. My skin is paper-thin and very fragile. Not only do I have lots of bruises and petechias, threatening to open up and bleed, but now I have steroid-induced ‘stretch marks’ which are oozing. They … Continue reading
Freedom or Chaos – 25 Feb 2013
Freedom or Chaos, sometimes they are different but in this case, they are synonymous. I have an electric wheelchair now which provides me the freedom to move around the hospital and protect my back from too much strain and the … Continue reading
Remembering we are not alone – 14 Feb 2013
Happy Valentines! Yesterday I was reminded that I am not alone. Oftentimes, I write my blog wondering if it is read, who reads it and is what I write pertinent to others. A while after I posted it I received … Continue reading
Complex Pain Management – 13 Feb 2013
Complex Pain Management specialists have become my best friends. It is pretty self-explanatory. They are responsible to make sure that the pain is under control and all the pills play nice together. We are talking serious drugs here and today … Continue reading
Posted in Back pain & fractures, Going Home, Healing Process, Home Challenges, Mobility Issues, New Normal, Side effects of long term steroids
Tagged adapted apartment, assisted living, back pain, GVHD, increased expenses, independence, limited mobility, living with cancer, mobility issues, steroids, vertebroplasty, wheelchair
3 Comments
Update 2nd Vertebroplasty – 30 Jan 2013
The 2nd vertebroplasty was done yesterday. They were suppossed to do T10 and T12 but I gave them permission to asses on the spot and do what they deemed to be the most efficient. Therefore, they ended up doing T7, … Continue reading
Financial Woes of Chronic Illnesses – 27 Jan 2013
Somebody once said cancer is easy, living is difficult. I’m surviving cancer, a stem cell transplant, GVHD, complications from the life-saving meds, so now what? I’ve already been through the steroid myopathy where I needed to learn to build muscles … Continue reading
Win some – Lose some – 18 Jan 2013
Waiting to hear further details regarding the next vertebroplasty to take place (perhaps next week) in my upper back. They have to select which compressed disks and fractures would be most beneficial to ‘fix’ as they can only do 3 … Continue reading
Posted in Chronic GVHD, Healing Process, Hospitalization, Immunocompromised Issues, Mobility Issues, New Normal, Side effects of long term steroids, Updates
Tagged back pain, chronic GVHD, cll, diabetes, elevated liver enzymes, mobility issues, physiotherapy, Steroid myopathy, steroids, vertebroplasty
4 Comments
Multiple Fractures – 16 Jan 2013
Wow! 2013. How fast time goes by and yet, sometimes, not fast enough. I’ve been here since November 14, 2012 and perhaps will be here and/or at another facility for another few months. Moral comes and goes. It’s normal. Well, … Continue reading
Rehab for rehab – 12 Jan 2013
I have been moved to the BMT unit a few days ago. There is a huge outbreak of the Norwolk virus in the city and most BMT patients have been ‘repatriated’ on the BMT for our own protection. My cold … Continue reading
Pain killers – 22 Dec 2012
I’ve been reluctant to take additional pain-killer drugs since I already take a form of long-lasting Oxycodone pill twice a day. However, I am also allowed to take a break-through every 4 hours as needed (5 mg Oxy). There’s so … Continue reading
Posted in Healing Process, Mobility Issues, Side effects of long term steroids, Updates
Tagged mobility issues, pain, pain killers, reluctant
1 Comment
