Category Archives: Tips & Tricks

Standing Up High Tech – 18 April 2012

Posted on April 19, 2012 by Marie-Chantal Marchand

Steroid Myopathy (weakness and loss of body and muscle mass in the hips, thighs, legs, feet, shoulders and upper back, and to a lesser extent the arms as well) had me completely bed-bound since approximately April 7, 2012. Daily, I … Continue reading →

Posted in Healing Process, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Side effects of long term steroids, Tips & Tricks | Tagged autonomy, bedpan, build muscles, build strength, don't give p, ego, exercising, find tips and tricks, independence, keep moral up, loss of body mass, loss of movemement, loss of muscle mass, occupational therapy, physiotherapy, shuffle, standing on own two feet, Steroid myopathy, use of arms, use of legs | 5 Comments

Whom am I when that is all there is? – 11 April 2012

Posted on April 11, 2012 by Marie-Chantal Marchand

When you are bed-bound, nowhere to go, no one else to think about, whom are you really? When your ego is completely stripped away, your dignity is out the door, you need help with everything, what is left? I have … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged alone, answer phone when convenient for me, appreciative of all they do, be myself, bedpan, bedpan procedure very exhausting and time consuming, being alone, being human, being selfish, bladder infection, blood infection, brain stll works, catheter, Dalai Lama wisdom, Deepak Chopra too many tweets, diapers, doing things for myself, dying, E-Coli, existential questions, family dying, friends passing away, Gut GVHD, healing, infection from within, Infections, IV lines, lack of control, lack of patience right now, laughter, letting go, Liver failure, love my friends, Lung Infection, mucous infection, no dignity, no ego, no mobility, no patience for trivial issues, PICC line, possibly dying, rely on people for everything, someone else do everything for me, someone else move my body in bed, someone else move my limbs, stop being what people need me to be, stop pleasing people, stress free environment, stress free room, treating myself to what i need, treating myself to what i want, type with one hand, washing me, what does life mean for me, whom am i, wiping me | 10 Comments

Loss of muscle and body mass – 3 April 2012

Posted on April 3, 2012 by Marie-Chantal Marchand

Sigh, always be careful what you criticize about others as you never know if it will happen to you. One of my biggest pet peeves (one of many on a very long list) are…chicken legs! I don’t mean the kinds … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged Acute GVHD, cantankerous, catheter, chronic GVHD, commode, condescending, difficulty breathing, exercises, fluid retnetion, fluids, frequent BM, Gut GVHD, Infections, Liver GVHD, loss body and muscle mass, loss of fluid, lungs, massive dose steroids, MMF, moon face, newbie nurses, nurses, patronizing, physiotherapy, walker, weak, weak muscles, yellow face | 3 Comments

To be “15″ again! – 22 March 2012

Posted on March 22, 2012 by Marie-Chantal Marchand

To be “15″ again!!!! And I don’t mean the age. For all those of you sending me positive healing energy, we need to focus on that Magic Liver Enzyme Number “15“!!!! My liver enzymes are very high which is not … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Tips & Tricks | Tagged accummulated fluids, Acute GVHD, Daily tips and tricks, elevated liver enzymes, fashion, getting around, limited mobility, liver enzyme, living with cancer, mobility issues, nature, nature conection, sitting in a chair, spirituality, swollen feet | 4 Comments

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Category Archives: Tips & Tricks

Standing Up High Tech – 18 April 2012

Whom am I when that is all there is? – 11 April 2012

Loss of muscle and body mass – 3 April 2012

To be “15″ again! – 22 March 2012

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