Tag Archives: Acute GVHD

Soon, I will be home – 1 May 2012

Posted on May 1, 2012 by Marie-Chantal Marchand

“You’re pink!” Those strangely enough were fabulous words to my ears a few days ago. My Fellow (and by this I mean the Fellow, Dr. Gupta, who has been following me for months now), came in and exclaimed that I … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying | Tagged Acute GVHD, adapted bathroom, anemic, assisted walking, atrophied muscles, bilirubin, blood transfusions, chronic GVHD, DNR, dying, GGT, Graft-versus-Leukemia/Lymphoma, healing, jaundiced eyes, leukemia, life, liver, liver enzymes, living, lymphoma, physio therapy, recuperating, remission, rest, steroids | 8 Comments

Internal Bleeding (Dieulafoy Lesions) – 29 April 2012

Posted on April 29, 2012 by Marie-Chantal Marchand

So, this wonderful internal bleeding issue in my GI Tract I just over came is called Dieulafoy’s Lesion (fingers crossed that it is over), is one of those obscure issues (none of the BMT docs had ever heard of it), … Continue reading →

Posted in Healing Process, Possibility of dying, Post-Transplant Issues | Tagged Acute GVHD, anemia, black stool, bleeding to death, blood transfusion, chronic GVHD, colonoscopy, diabetes, Dieulafoy Lesion, endoscopy, epinephrine, gastrointestinal, GI Tract Angio Scan, GI Tract isues, haemoclipping, immunoglobulin, internal bleeding, intestinal bleeding, mucosal defect, non-ulcerated arterial lesion, NPO, platelet transfusion, possibility of dying, Push Enteroscopy, rare condition, sigmoidscopy, total parental nutrition, TPN | 2 Comments

My Daily Routine – 21 April 2012

Posted on April 21, 2012 by Marie-Chantal Marchand

Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →

Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids | Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends | 1 Comment

Loss of muscle and body mass – 3 April 2012

Posted on April 3, 2012 by Marie-Chantal Marchand

Sigh, always be careful what you criticize about others as you never know if it will happen to you. One of my biggest pet peeves (one of many on a very long list) are…chicken legs! I don’t mean the kinds … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged Acute GVHD, cantankerous, catheter, chronic GVHD, commode, condescending, difficulty breathing, exercises, fluid retnetion, fluids, frequent BM, Gut GVHD, Infections, Liver GVHD, loss body and muscle mass, loss of fluid, lungs, massive dose steroids, MMF, moon face, newbie nurses, nurses, patronizing, physiotherapy, walker, weak, weak muscles, yellow face | 3 Comments

To be “15″ again! – 22 March 2012

Posted on March 22, 2012 by Marie-Chantal Marchand

To be “15″ again!!!! And I don’t mean the age. For all those of you sending me positive healing energy, we need to focus on that Magic Liver Enzyme Number “15“!!!! My liver enzymes are very high which is not … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Tips & Tricks | Tagged accummulated fluids, Acute GVHD, Daily tips and tricks, elevated liver enzymes, fashion, getting around, limited mobility, liver enzyme, living with cancer, mobility issues, nature, nature conection, sitting in a chair, spirituality, swollen feet | 4 Comments

Harsh Reality – 17 March 2012

Posted on March 17, 2012 by Marie-Chantal Marchand

Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues | Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids | 6 Comments

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Tag Archives: Acute GVHD

Soon, I will be home – 1 May 2012

Internal Bleeding (Dieulafoy Lesions) – 29 April 2012

My Daily Routine – 21 April 2012

Loss of muscle and body mass – 3 April 2012

To be “15″ again! – 22 March 2012

Harsh Reality – 17 March 2012

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