Tag Archives: bedpan

Standing Up High Tech – 18 April 2012

Posted on April 19, 2012 by Marie-Chantal Marchand

Steroid Myopathy (weakness and loss of body and muscle mass in the hips, thighs, legs, feet, shoulders and upper back, and to a lesser extent the arms as well) had me completely bed-bound since approximately April 7, 2012. Daily, I … Continue reading →

Posted in Healing Process, Post-Transplant Issues, Post-Transplant Updates, Relapse issues, Side effects of long term steroids, Tips & Tricks | Tagged autonomy, bedpan, build muscles, build strength, don't give p, ego, exercising, find tips and tricks, independence, keep moral up, loss of body mass, loss of movemement, loss of muscle mass, occupational therapy, physiotherapy, shuffle, standing on own two feet, Steroid myopathy, use of arms, use of legs | 5 Comments

Whom am I when that is all there is? – 11 April 2012

Posted on April 11, 2012 by Marie-Chantal Marchand

When you are bed-bound, nowhere to go, no one else to think about, whom are you really? When your ego is completely stripped away, your dignity is out the door, you need help with everything, what is left? I have … Continue reading →

Posted in Healing Process, Chronic GVHD, Post-Transplant Issues, Possibility of dying, Tips & Tricks, Side effects of long term steroids, Acute GVHD | Tagged healing, dying, Infections, Gut GVHD, Lung Infection, Liver failure, catheter, bladder infection, bedpan, E-Coli, blood infection, mucous infection, no dignity, no ego, alone, possibly dying, friends passing away, family dying, lack of control, letting go, IV lines, PICC line, infection from within, no mobility, rely on people for everything, diapers, brain stll works, existential questions, whom am i, being human, being alone, being selfish, stop pleasing people, stop being what people need me to be, be myself, what does life mean for me, laughter, doing things for myself, treating myself to what i want, treating myself to what i need, answer phone when convenient for me, love my friends, stress free room, stress free environment, someone else do everything for me, washing me, wiping me, someone else move my limbs, someone else move my body in bed, type with one hand, appreciative of all they do, no patience for trivial issues, Deepak Chopra too many tweets, Dalai Lama wisdom, bedpan procedure very exhausting and time consuming, lack of patience right now | 10 Comments

Update and Steroid Myopathy – 7 April 2012

Posted on April 7, 2012 by Marie-Chantal Marchand

Well, I guess all this upbeat, all is well, I’m doing good, I’ll make it out of here, hooray!….doesn’t paint a realistic picture of what is truly going on. Yes, the liver is still fluctuating and yesterday it was 56 … Continue reading →

Posted in Post-Transplant Updates, Healing Process, Possibility of dying, Side effects of long term steroids, Acute GVHD | Tagged Gut GVHD, Lung Infection, catheter, Steroid myopathy, bed-ridden, bladder infection, fever, oxygen, muscle loss, weakness, loss of body mass, bedside commode, bedpan, blood transfusion, platelet transfusion, no appetite, friends, emotional, short visits, I'm not here to entertain, healing and relaxation, soothing, no stress, family, emotional journey, alone no matter what, 2 months in hospital, need a break | 11 Comments

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Tag Archives: bedpan

Standing Up High Tech – 18 April 2012

Whom am I when that is all there is? – 11 April 2012

Update and Steroid Myopathy – 7 April 2012

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