Tag Archives: chronic GVHD

Win some – Lose some – 18 Jan 2013

Posted on January 18, 2013 by Marie-Chantal Marchand

Waiting to hear further details regarding the next vertebroplasty to take place (perhaps next week) in my upper back. They have to select which compressed disks and fractures would be most beneficial to ‘fix’ as they can only do 3 … Continue reading →

Posted in Chronic GVHD, Healing Process, Hospitalization, Immunocompromised Issues, Mobility Issues, New Normal, Side effects of long term steroids, Updates | Tagged back pain, chronic GVHD, cll, diabetes, elevated liver enzymes, mobility issues, physiotherapy, Steroid myopathy, steroids, vertebroplasty | 4 Comments

Update – Revisiting GVHD – 19 Aug 2012

Posted on August 19, 2012 by Marie-Chantal Marchand

Here we are, 2 years almost to the day, when I began chemo (diagnosed Aug 2009 but began chemo Aug 2010). That’s when my ‘character building’ journey truly began, and I thought I had enough character as it was! Much … Continue reading →

Posted in Chronic GVHD, Healing Process, Mobility Issues, New Normal, Updates | Tagged atrophied muscles, bruises, bursting blood vessels, chronic GVHD, cll, ear, echymoses, eyes, gi tract, hair growth, hair loss, healing, Infections, liver, liver biopsy, long-term effects of steroids, Lung Infection, lungs, lymphoma, mobility, mobility issues, osteoporosis, oxygen, petechia, physiotherapy, purpura, skin, Steroid myopathy, updates | 1 Comment

Soon, I will be home – 1 May 2012

Posted on May 1, 2012 by Marie-Chantal Marchand

“You’re pink!” Those strangely enough were fabulous words to my ears a few days ago. My Fellow (and by this I mean the Fellow, Dr. Gupta, who has been following me for months now), came in and exclaimed that I … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying | Tagged Acute GVHD, adapted bathroom, anemic, assisted walking, atrophied muscles, bilirubin, blood transfusions, chronic GVHD, DNR, dying, GGT, Graft-versus-Leukemia/Lymphoma, healing, jaundiced eyes, leukemia, life, liver, liver enzymes, living, lymphoma, physio therapy, recuperating, remission, rest, steroids | 8 Comments

Internal Bleeding (Dieulafoy Lesions) – 29 April 2012

Posted on April 29, 2012 by Marie-Chantal Marchand

So, this wonderful internal bleeding issue in my GI Tract I just over came is called Dieulafoy’s Lesion (fingers crossed that it is over), is one of those obscure issues (none of the BMT docs had ever heard of it), … Continue reading →

Posted in Healing Process, Possibility of dying, Post-Transplant Issues | Tagged Acute GVHD, anemia, black stool, bleeding to death, blood transfusion, chronic GVHD, colonoscopy, diabetes, Dieulafoy Lesion, endoscopy, epinephrine, gastrointestinal, GI Tract Angio Scan, GI Tract isues, haemoclipping, immunoglobulin, internal bleeding, intestinal bleeding, mucosal defect, non-ulcerated arterial lesion, NPO, platelet transfusion, possibility of dying, Push Enteroscopy, rare condition, sigmoidscopy, total parental nutrition, TPN | 2 Comments

My Daily Routine – 21 April 2012

Posted on April 21, 2012 by Marie-Chantal Marchand

Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →

Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids | Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends | 1 Comment

Loss of muscle and body mass – 3 April 2012

Posted on April 3, 2012 by Marie-Chantal Marchand

Sigh, always be careful what you criticize about others as you never know if it will happen to you. One of my biggest pet peeves (one of many on a very long list) are…chicken legs! I don’t mean the kinds … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged Acute GVHD, cantankerous, catheter, chronic GVHD, commode, condescending, difficulty breathing, exercises, fluid retnetion, fluids, frequent BM, Gut GVHD, Infections, Liver GVHD, loss body and muscle mass, loss of fluid, lungs, massive dose steroids, MMF, moon face, newbie nurses, nurses, patronizing, physiotherapy, walker, weak, weak muscles, yellow face | 3 Comments

Harsh Reality – 17 March 2012

Posted on March 17, 2012 by Marie-Chantal Marchand

Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues | Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids | 6 Comments

Adrenal Glands – 15 Oct 2011

Posted on October 15, 2011 by Marie-Chantal Marchand

At 233 days post transplant, in fact, almost 17 months after the first nasty symptoms appeared when everything started going downhill, here I am today, on a beautiful sunny Saturday (which that in itself is always a nice thing to appreciate here on … Continue reading →

Posted in Healing Process, Post-Transplant Updates | Tagged adrenal glands, chronic GVHD, healing process | 1 Comment

Tag Archives: chronic GVHD

Win some – Lose some – 18 Jan 2013

Update – Revisiting GVHD – 19 Aug 2012

Soon, I will be home – 1 May 2012

Internal Bleeding (Dieulafoy Lesions) – 29 April 2012

My Daily Routine – 21 April 2012

Loss of muscle and body mass – 3 April 2012

Harsh Reality – 17 March 2012

Adrenal Glands – 15 Oct 2011

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