Tag Archives: Gut GVHD

Whom am I when that is all there is? – 11 April 2012

Posted on April 11, 2012 by Marie-Chantal Marchand

When you are bed-bound, nowhere to go, no one else to think about, whom are you really? When your ego is completely stripped away, your dignity is out the door, you need help with everything, what is left? I have … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged alone, answer phone when convenient for me, appreciative of all they do, be myself, bedpan, bedpan procedure very exhausting and time consuming, being alone, being human, being selfish, bladder infection, blood infection, brain stll works, catheter, Dalai Lama wisdom, Deepak Chopra too many tweets, diapers, doing things for myself, dying, E-Coli, existential questions, family dying, friends passing away, Gut GVHD, healing, infection from within, Infections, IV lines, lack of control, lack of patience right now, laughter, letting go, Liver failure, love my friends, Lung Infection, mucous infection, no dignity, no ego, no mobility, no patience for trivial issues, PICC line, possibly dying, rely on people for everything, someone else do everything for me, someone else move my body in bed, someone else move my limbs, stop being what people need me to be, stop pleasing people, stress free environment, stress free room, treating myself to what i need, treating myself to what i want, type with one hand, washing me, what does life mean for me, whom am i, wiping me | 10 Comments

Update and Steroid Myopathy – 7 April 2012

Posted on April 7, 2012 by Marie-Chantal Marchand

Well, I guess all this upbeat, all is well, I’m doing good, I’ll make it out of here, hooray!….doesn’t paint a realistic picture of what is truly going on. Yes, the liver is still fluctuating and yesterday it was 56 … Continue reading →

Posted in Acute GVHD, Healing Process, Possibility of dying, Post-Transplant Updates, Side effects of long term steroids | Tagged 2 months in hospital, alone no matter what, bed-ridden, bedpan, bedside commode, bladder infection, blood transfusion, catheter, emotional, emotional journey, family, fever, friends, Gut GVHD, healing and relaxation, I'm not here to entertain, loss of body mass, Lung Infection, muscle loss, need a break, no appetite, no stress, oxygen, platelet transfusion, short visits, soothing, Steroid myopathy, weakness | 11 Comments

Loss of muscle and body mass – 3 April 2012

Posted on April 3, 2012 by Marie-Chantal Marchand

Sigh, always be careful what you criticize about others as you never know if it will happen to you. One of my biggest pet peeves (one of many on a very long list) are…chicken legs! I don’t mean the kinds … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged Acute GVHD, cantankerous, catheter, chronic GVHD, commode, condescending, difficulty breathing, exercises, fluid retnetion, fluids, frequent BM, Gut GVHD, Infections, Liver GVHD, loss body and muscle mass, loss of fluid, lungs, massive dose steroids, MMF, moon face, newbie nurses, nurses, patronizing, physiotherapy, walker, weak, weak muscles, yellow face | 3 Comments

Harsh Reality – 17 March 2012

Posted on March 17, 2012 by Marie-Chantal Marchand

Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues | Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids | 6 Comments

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Tag Archives: Gut GVHD

Whom am I when that is all there is? – 11 April 2012

Update and Steroid Myopathy – 7 April 2012

Loss of muscle and body mass – 3 April 2012

Harsh Reality – 17 March 2012

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