Tag Archives: healing

My journey is not typical – 25 August 2012

Posted on August 25, 2012 by Marie-Chantal Marchand

A friend of mine, who happens to be post stem cell transplant herself, indicated that my ‘recovery’ journey was by no means straightforward. And that is very important to me for everyone out there going through their own blood cancer journey, be it … Continue reading →

Posted in Healing Process, New Normal | Tagged cll, complications, daring to dream, dying, getting stronger, healing, hope, Life with CLL & BMT, liver issues, positive attitude, Richter's Transformation, setting achievable goals, surviving cancer, TP53 with 17p Deletion, Transformed Non-Hodgkin's Lymphoma | Leave a comment

Update – Revisiting GVHD – 19 Aug 2012

Posted on August 19, 2012 by Marie-Chantal Marchand

Here we are, 2 years almost to the day, when I began chemo (diagnosed Aug 2009 but began chemo Aug 2010). That’s when my ‘character building’ journey truly began, and I thought I had enough character as it was! Much … Continue reading →

Posted in Chronic GVHD, Healing Process, Mobility Issues, New Normal, Updates | Tagged atrophied muscles, bruises, bursting blood vessels, chronic GVHD, cll, ear, echymoses, eyes, gi tract, hair growth, hair loss, healing, Infections, liver, liver biopsy, long-term effects of steroids, Lung Infection, lungs, lymphoma, mobility, mobility issues, osteoporosis, oxygen, petechia, physiotherapy, purpura, skin, Steroid myopathy, updates | 1 Comment

What I won’t miss about the hospital – 6 May 2012

Posted on May 6, 2012 by Marie-Chantal Marchand

Other than the obvious of having been hospitalized for three months and having gone through hell and back, there are many things I will definitely NOT miss from here. Procedures, Tests, Transfusions, Infusions, Injections, etc. – the first thing I … Continue reading →

Posted in Chronic GVHD, Going Home, Healing Process, Hospitalization, New Normal | Tagged healing, Infections, IV lines, meds, blood work, napping, Marie-Chantal Marchand, colonoscopy, diabetes, Push Enteroscopy, blood transfusions, noise, sleep dprivation, constant interruption, no privacy, tests, procedures, hospital food, air vents, ear plugs, constantly changing rooms, efficiency, human errors, IV poles, home sick, cabin fever, wrong meds, midnight blood sugar pricks, midnight vitals, freezing rooms, hats, scarves, platelet transfusions, blood sugar check, infusions, bronchoscopy, sigmoidoscopy, bone marrow biopsy, neck lymph node biospy, hospital noises, CT Scans, CT Angio Scans, Chest X-Rays, Head CT Scan, Dieulafoy Lesion< haemaclipping, PICC lines, hospital rooms, privacy, dignity, respect, visitors, home help, home assistance | 6 Comments

Soon, I will be home – 1 May 2012

Posted on May 1, 2012 by Marie-Chantal Marchand

“You’re pink!” Those strangely enough were fabulous words to my ears a few days ago. My Fellow (and by this I mean the Fellow, Dr. Gupta, who has been following me for months now), came in and exclaimed that I … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying | Tagged Acute GVHD, adapted bathroom, anemic, assisted walking, atrophied muscles, bilirubin, blood transfusions, chronic GVHD, DNR, dying, GGT, Graft-versus-Leukemia/Lymphoma, healing, jaundiced eyes, leukemia, life, liver, liver enzymes, living, lymphoma, physio therapy, recuperating, remission, rest, steroids | 8 Comments

My Daily Routine – 21 April 2012

Posted on April 21, 2012 by Marie-Chantal Marchand

Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →

Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids | Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends | 1 Comment

Whom am I when that is all there is? – 11 April 2012

Posted on April 11, 2012 by Marie-Chantal Marchand

When you are bed-bound, nowhere to go, no one else to think about, whom are you really? When your ego is completely stripped away, your dignity is out the door, you need help with everything, what is left? I have … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged alone, answer phone when convenient for me, appreciative of all they do, be myself, bedpan, bedpan procedure very exhausting and time consuming, being alone, being human, being selfish, bladder infection, blood infection, brain stll works, catheter, Dalai Lama wisdom, Deepak Chopra too many tweets, diapers, doing things for myself, dying, E-Coli, existential questions, family dying, friends passing away, Gut GVHD, healing, infection from within, Infections, IV lines, lack of control, lack of patience right now, laughter, letting go, Liver failure, love my friends, Lung Infection, mucous infection, no dignity, no ego, no mobility, no patience for trivial issues, PICC line, possibly dying, rely on people for everything, someone else do everything for me, someone else move my body in bed, someone else move my limbs, stop being what people need me to be, stop pleasing people, stress free environment, stress free room, treating myself to what i need, treating myself to what i want, type with one hand, washing me, what does life mean for me, whom am i, wiping me | 10 Comments

Hair – 15 Oct 2011

Posted on October 15, 2011 by Marie-Chantal Marchand

Another good news, and this one I found out the hard way. But, I’ll take good news no matter how it’s delivered. My hair was getting long (relatively speaking, of course, as it was all of 1 1/2-inch long), bushy, … Continue reading →

Posted in Healing Process, Post-Transplant Updates | Tagged hair post chemo, healing, normal side-effects of GVHD, the new normal post-cancer | 2 Comments

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Tag Archives: healing

My journey is not typical – 25 August 2012

Update – Revisiting GVHD – 19 Aug 2012

What I won’t miss about the hospital – 6 May 2012

Soon, I will be home – 1 May 2012

My Daily Routine – 21 April 2012

Whom am I when that is all there is? – 11 April 2012

Hair – 15 Oct 2011

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