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Tag Archives: Liver failure
Whom am I when that is all there is? – 11 April 2012
When you are bed-bound, nowhere to go, no one else to think about, whom are you really? When your ego is completely stripped away, your dignity is out the door, you need help with everything, what is left? I have … Continue reading →
Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks
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Tagged alone, answer phone when convenient for me, appreciative of all they do, be myself, bedpan, bedpan procedure very exhausting and time consuming, being alone, being human, being selfish, bladder infection, blood infection, brain stll works, catheter, Dalai Lama wisdom, Deepak Chopra too many tweets, diapers, doing things for myself, dying, E-Coli, existential questions, family dying, friends passing away, Gut GVHD, healing, infection from within, Infections, IV lines, lack of control, lack of patience right now, laughter, letting go, Liver failure, love my friends, Lung Infection, mucous infection, no dignity, no ego, no mobility, no patience for trivial issues, PICC line, possibly dying, rely on people for everything, someone else do everything for me, someone else move my body in bed, someone else move my limbs, stop being what people need me to be, stop pleasing people, stress free environment, stress free room, treating myself to what i need, treating myself to what i want, type with one hand, washing me, what does life mean for me, whom am i, wiping me
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10 Comments
Harsh Reality – 17 March 2012
Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →
Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues
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Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids
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6 Comments
