Tag Archives: Lung Infection

Lung Infection and Pneumonia – 24 August 2012

Posted on August 24, 2012 by Marie-Chantal Marchand

Yes, that’s right, I currently have lung infections – plural. UGH! The last update sent out on Sunday, August 19 (5 days ago) stating that my lungs were clear and doing fine was accurate, as far as I knew. How … Continue reading →

Posted in Immunocompromised Issues, New Normal, Post-Transplant Issues, Post-Transplant Updates, Side effects of long term steroids, Updates | Tagged bacteria, bloody eye, bmt, Infections, Lung Infection, lungs, pneumonia, Respiratory Syncytial Virus, RSV, severely immunocompromised, trauma, virus | 3 Comments

Update – Revisiting GVHD – 19 Aug 2012

Posted on August 19, 2012 by Marie-Chantal Marchand

Here we are, 2 years almost to the day, when I began chemo (diagnosed Aug 2009 but began chemo Aug 2010). That’s when my ‘character building’ journey truly began, and I thought I had enough character as it was! Much … Continue reading →

Posted in Chronic GVHD, Healing Process, Mobility Issues, New Normal, Updates | Tagged atrophied muscles, bruises, bursting blood vessels, chronic GVHD, cll, ear, echymoses, eyes, gi tract, hair growth, hair loss, healing, Infections, liver, liver biopsy, long-term effects of steroids, Lung Infection, lungs, lymphoma, mobility, mobility issues, osteoporosis, oxygen, petechia, physiotherapy, purpura, skin, Steroid myopathy, updates | 1 Comment

Dance of the Meds’ Side-Effects – 10 July 2012

Posted on July 10, 2012 by Marie-Chantal Marchand

One step forward – two steps backwards, do the shuffle and the hokey pokey – put your left foot in, take your left foot out and shake it all around… Strangely enough, this actually is a very accurate account of … Continue reading →

Posted in Chronic GVHD, Healing Process, New Normal, Side effects of long term steroids | Tagged antibiotics, bruises, C. Diff., collapsed lungs, constant shaking, dry eyes, dry mouth, ear infection, elevated liver enzymes, endurance, eye GVHD, jaundiced eyes, Liver GVHD, long-term use of steroids, Lung Infection, Marie-Chantal Marchand, Mouth GVHD, painful joints, paper-thin skin, patient, perforated ear drum, scarred liver, scarred lungs, sense of humour, steroid fat deposit neck and stomach, Steroid myopathy, stiff legs, strength, swollen feet, wobbly legs | Leave a comment

Hearing trickling back and Update – 30 June 2012

Posted on June 30, 2012 by Marie-Chantal Marchand

Strangely enough, today, I was watching a movie and kept hearing a faint whistling vibration on the left side of my head. I thought they were noises coming from outside the window. Annoying as it was, I realized that sound was slowly trickling back … Continue reading →

Posted in Acute GVHD, Healing Process, New Normal, Possibility of dying, Relapse issues, Side effects of long term steroids | Tagged cll, CT Scans, exercise, fear of dying, fear of GVHD, fear of relapse, fear of the unknown, healing from cancer, hearing coming back, hearing issues, life is good, liiver issues, living with cancer, Lung Infection, lymph nodes, Marie-Chantal Marchand, new normal, remission, Richter's Syndrome or Transformation, spleen issues, tapering off steroids, TP53 with 17p Deletion, x-rays | Leave a comment

Home – 25 June 2012

Posted on June 25, 2012 by Marie-Chantal Marchand

Home, yes, I’m home. I came home on June 19, 2012 after 129 days at the hospital. Everyone seems quite excited by the idea that I am home. Of course I am delighted at the goal finally achieved of surviving … Continue reading →

Posted in Going Home, Healing Process, New Normal | Tagged bmt, cll, dying, exhaustion, fears, geenrosity of friends and strangers, GVHD, healing from cancer, home, immunossuppressants, lack of freedom, leukemia, limitations, liver issues, living with cancer, Lung Infection, lymphoma, Marie-Chantal Marchand, nutrition, physio, rehab, relying on people for basic needs, steroid side effects, steroids, support system, weakness | 1 Comment

My Daily Routine – 21 April 2012

Posted on April 21, 2012 by Marie-Chantal Marchand

Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →

Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids | Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends | 1 Comment

Whom am I when that is all there is? – 11 April 2012

Posted on April 11, 2012 by Marie-Chantal Marchand

When you are bed-bound, nowhere to go, no one else to think about, whom are you really? When your ego is completely stripped away, your dignity is out the door, you need help with everything, what is left? I have … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Side effects of long term steroids, Tips & Tricks | Tagged alone, answer phone when convenient for me, appreciative of all they do, be myself, bedpan, bedpan procedure very exhausting and time consuming, being alone, being human, being selfish, bladder infection, blood infection, brain stll works, catheter, Dalai Lama wisdom, Deepak Chopra too many tweets, diapers, doing things for myself, dying, E-Coli, existential questions, family dying, friends passing away, Gut GVHD, healing, infection from within, Infections, IV lines, lack of control, lack of patience right now, laughter, letting go, Liver failure, love my friends, Lung Infection, mucous infection, no dignity, no ego, no mobility, no patience for trivial issues, PICC line, possibly dying, rely on people for everything, someone else do everything for me, someone else move my body in bed, someone else move my limbs, stop being what people need me to be, stop pleasing people, stress free environment, stress free room, treating myself to what i need, treating myself to what i want, type with one hand, washing me, what does life mean for me, whom am i, wiping me | 10 Comments

Update and Steroid Myopathy – 7 April 2012

Posted on April 7, 2012 by Marie-Chantal Marchand

Well, I guess all this upbeat, all is well, I’m doing good, I’ll make it out of here, hooray!….doesn’t paint a realistic picture of what is truly going on. Yes, the liver is still fluctuating and yesterday it was 56 … Continue reading →

Posted in Acute GVHD, Healing Process, Possibility of dying, Post-Transplant Updates, Side effects of long term steroids | Tagged 2 months in hospital, alone no matter what, bed-ridden, bedpan, bedside commode, bladder infection, blood transfusion, catheter, emotional, emotional journey, family, fever, friends, Gut GVHD, healing and relaxation, I'm not here to entertain, loss of body mass, Lung Infection, muscle loss, need a break, no appetite, no stress, oxygen, platelet transfusion, short visits, soothing, Steroid myopathy, weakness | 11 Comments

Update and Nutrition – 4 April 2012

Posted on April 4, 2012 by Marie-Chantal Marchand

Finally, today is a breathing day! Literally. I have been working on exercises for my lungs and I can finally take a deep breath. It is definitely a good start. There is still a little bit of crackle noises in … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Post-Transplant Issues, Side effects of long term steroids | Tagged expensive to supplement all my food, food, frustrations, gaining body mass, going home eventually, kitchen inneficiencies, lack of nutritional food in hospitals, lack of saliva, liver ezymes, Lung Infection, no cooperation from hospital kitchen, nutrition, personally supplementing food, physiotherapy, screw ups, strengthening muscles | Leave a comment

Harsh Reality – 17 March 2012

Posted on March 17, 2012 by Marie-Chantal Marchand

Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues | Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids | 6 Comments

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Tag Archives: Lung Infection

Lung Infection and Pneumonia – 24 August 2012

Update – Revisiting GVHD – 19 Aug 2012

Dance of the Meds’ Side-Effects – 10 July 2012

Hearing trickling back and Update – 30 June 2012

Home – 25 June 2012

My Daily Routine – 21 April 2012

Whom am I when that is all there is? – 11 April 2012

Update and Steroid Myopathy – 7 April 2012

Update and Nutrition – 4 April 2012

Harsh Reality – 17 March 2012

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