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Tag Archives: physio therapy
Soon, I will be home – 1 May 2012
“You’re pink!” Those strangely enough were fabulous words to my ears a few days ago. My Fellow (and by this I mean the Fellow, Dr. Gupta, who has been following me for months now), came in and exclaimed that I … Continue reading →
Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying
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Tagged Acute GVHD, adapted bathroom, anemic, assisted walking, atrophied muscles, bilirubin, blood transfusions, chronic GVHD, DNR, dying, GGT, Graft-versus-Leukemia/Lymphoma, healing, jaundiced eyes, leukemia, life, liver, liver enzymes, living, lymphoma, physio therapy, recuperating, remission, rest, steroids
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8 Comments
My Daily Routine – 21 April 2012
Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →
Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids
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Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends
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1 Comment
