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Tag Archives: relying on people for basic needs
Home – 25 June 2012
Home, yes, I’m home. I came home on June 19, 2012 after 129 days at the hospital. Everyone seems quite excited by the idea that I am home. Of course I am delighted at the goal finally achieved of surviving … Continue reading →
Posted in Going Home, Healing Process, New Normal
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Tagged GVHD, support system, cll, bmt, dying, liver issues, steroids, Lung Infection, living with cancer, nutrition, weakness, relying on people for basic needs, leukemia, lymphoma, Marie-Chantal Marchand, home, limitations, fears, geenrosity of friends and strangers, physio, rehab, lack of freedom, steroid side effects, exhaustion, healing from cancer, immunossuppressants
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1 Comment
My Daily Routine – 21 April 2012
Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →
Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids
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Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends
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1 Comment
