Tag Archives: steroids

Freedom or Chaos – 25 Feb 2013

Posted on February 25, 2013 by Marie-Chantal Marchand

Freedom or Chaos, sometimes they are different but in this case, they are synonymous. I have an electric wheelchair now which provides me the freedom to move around the hospital and protect my back from too much strain and the … Continue reading →

Posted in Back pain & fractures, Healing Process, Mobility Issues, New Normal, Side effects of long term steroids | Tagged back pain, living with cancer, mobility issues, Steroid myopathy, steroids, vertebroplasty | 5 Comments

Complex Pain Management – 13 Feb 2013

Posted on February 13, 2013 by Marie-Chantal Marchand

Complex Pain Management specialists have become my best friends. It is pretty self-explanatory. They are responsible to make sure that the pain is under control and all the pills play nice together. We are talking serious drugs here and today … Continue reading →

Posted in Back pain & fractures, Going Home, Healing Process, Home Challenges, Mobility Issues, New Normal, Side effects of long term steroids | Tagged adapted apartment, assisted living, back pain, GVHD, increased expenses, independence, limited mobility, living with cancer, mobility issues, steroids, vertebroplasty, wheelchair | 3 Comments

Win some – Lose some – 18 Jan 2013

Posted on January 18, 2013 by Marie-Chantal Marchand

Waiting to hear further details regarding the next vertebroplasty to take place (perhaps next week) in my upper back. They have to select which compressed disks and fractures would be most beneficial to ‘fix’ as they can only do 3 … Continue reading →

Posted in Chronic GVHD, Healing Process, Hospitalization, Immunocompromised Issues, Mobility Issues, New Normal, Side effects of long term steroids, Updates | Tagged back pain, chronic GVHD, cll, diabetes, elevated liver enzymes, mobility issues, physiotherapy, Steroid myopathy, steroids, vertebroplasty | 4 Comments

Home – 25 June 2012

Posted on June 25, 2012 by Marie-Chantal Marchand

Home, yes, I’m home. I came home on June 19, 2012 after 129 days at the hospital. Everyone seems quite excited by the idea that I am home. Of course I am delighted at the goal finally achieved of surviving … Continue reading →

Posted in Going Home, Healing Process, New Normal | Tagged bmt, cll, dying, exhaustion, fears, geenrosity of friends and strangers, GVHD, healing from cancer, home, immunossuppressants, lack of freedom, leukemia, limitations, liver issues, living with cancer, Lung Infection, lymphoma, Marie-Chantal Marchand, nutrition, physio, rehab, relying on people for basic needs, steroid side effects, steroids, support system, weakness | 1 Comment

Soon, I will be home – 1 May 2012

Posted on May 1, 2012 by Marie-Chantal Marchand

“You’re pink!” Those strangely enough were fabulous words to my ears a few days ago. My Fellow (and by this I mean the Fellow, Dr. Gupta, who has been following me for months now), came in and exclaimed that I … Continue reading →

Posted in Acute GVHD, Chronic GVHD, Healing Process, Possibility of dying | Tagged Acute GVHD, adapted bathroom, anemic, assisted walking, atrophied muscles, bilirubin, blood transfusions, chronic GVHD, DNR, dying, GGT, Graft-versus-Leukemia/Lymphoma, healing, jaundiced eyes, leukemia, life, liver, liver enzymes, living, lymphoma, physio therapy, recuperating, remission, rest, steroids | 8 Comments

My Daily Routine – 21 April 2012

Posted on April 21, 2012 by Marie-Chantal Marchand

Being bed-ridden makes me a sitting duck. I seem to have very little control over how my time is allotted throughout the day. I think people assume I just sit in bed and have nothing to do. Not so much! … Continue reading →

Posted in Acute GVHD, Bad reactions to Meds, Chronic GVHD, Healing Process, Possibility of dying, Post-Transplant Issues, Relapse issues, Side effects of long term steroids | Tagged Acute GVHD, bad-pans, basic needs, being told you will die, bilirubin, blood work, care-givers, chronic GVHD, cll, dry eyes GVHD, dry mout GVHD, eating, emotional turmoil, energy sucking, fatigue, friends, GI Tract issues, going home, hallucinations, healing, human error, interruptions, leukemia, life threatening, life threatening infections, liver, long-term steroids effects, Lung Infection, lymphoma, Marie-Chantal Marchand, mariechantalmarchand, meals, meds, mobility issues, napping, not a vacation, not lounging around, occupational therapy, on-going Chronic GVHD, physical challenges, physio therapy, pills, relying on nurses, relying on people for basic needs, resting, Richter's Transformation, self-conscious, sleep deprivation, sleepless nights, SLL, specialists, steroids, time, TP53 with 17p Deletion, visiting, visiting friends | 1 Comment

Harsh Reality – 17 March 2012

Posted on March 17, 2012 by Marie-Chantal Marchand

Ok, time for the hard facts. I’ve been trying to keep this as light-hearted as possible, and give you the highlights, but here is what the harsh reality of this situation is. So as you all know, I had a … Continue reading →

Posted in Chronic GVHD, Possibility of dying, Post-Transplant Issues, Relapse issues | Tagged Acute GVHD, chronic GVHD, diet, dying, fluids, Gut GVHD, heart failure, Infections, Life threatening GVHD, Liver failure, Liver GVHD, liver issues, lung failure, Lung Infection, mobility issues, Mouth GVHD, Richter's Syndrome or Transformation, Severe GVHD, Staying positive, steroids | 6 Comments

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Tag Archives: steroids

Freedom or Chaos – 25 Feb 2013

Complex Pain Management – 13 Feb 2013

Win some – Lose some – 18 Jan 2013

Home – 25 June 2012

Soon, I will be home – 1 May 2012

My Daily Routine – 21 April 2012

Harsh Reality – 17 March 2012

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